Souzi Makri has been a patient advocate since 2008 when she was diagnosed with enteropathic spondylarthritis and Fibormyalgia.
Souzi has been trained as a patient research partner by EULAR in 2013 (The European Alliance of Associations for Rheumatology) and became a EUPATI Fellow in 2015, after following a 14-month course on the research and development of medicines. Since then, she has participated in various research projects with Academia, Industry and other European consortia as a patient research partner.
Souzi has led two European Organizations as Chair, namely AGORA (Southern European Platform for people with Rheumatic diseases) from 2011-2017, and ENFA (European Network of Fibromyalgia Associations) from 2014-2019.
At present, Souzi is a strategic advisor of EAfPA and also holds the position of Vice- President of the Cyprus League Against Rheumatism. Currently Souzi is the Chair Elect of EULAR-PARE (People with Arthritis and Rheumatism in Europe) and will become Chair in June 2021.