Facing the challenge of multimorbidity at PACT session in Gastein
On the 1st of October, the Patient Access Partnership (PACT) organised a session on “Facing the challenge of multimorbidity… how do we make it work for the patients” at the European Health Forum in Gastein. This session gathered a big number of participants from across the EU.
Patients are increasingly faced with the challenge of living with more than one condition, and multimorbidity is on its way to becoming a fundamental issue for the sustainability of healthcare systems.
The session kicked off with the insight of 3 patients, Bert Aben from GAMIAN Europe, Luis Mendao from EATG, and Wolfram Nolte from EuropaColon, who shared their experience of living daily with multiple chronic conditions and navigating healthcare systems. Other distinguished speakers also provided perspectives. Stakeholders of the PACT representing healthcare professionals, hospitals, industry such as CPME, EFPIA, EGA addressed their sectoral contribution to tackle multimorbidities.
The session was moderated by John Bowis, Special Adviser for Health and Environmental Policy, Former MEP.
Stanimir Hasurdjiev (an EPF Board Member) “The session today highlighted how patients from across diseases areas and EU countries are confronted with living with two or more chronic conditions. The direct experience of patients show that coordination of care, shared decision making, and a patient centred approach are all essential to provide care that truly meets the needs of patients with multiple conditions. Though there is increasing commitment to these ideas, they are not a reality for all EU patients, so it will take coordinated actions from all partners in healthcare to tackle the challenge of multimorbidity. This is what the Patient Access Partnership aims to achieve through a multi-stakeholder collaboration.”
Birgit Berger (CPME) noted that “PACT is a powerful tool to make the patients’ view heard and patients’ stories are important. Doctors also face challenges due to working conditions and management . We need more time with the patients in order to render shared decision- making as the cornerstone, and to have good cooperation with patients. Collaboration between all healthcare professionals is also fundamental as we have heard today, pharmacists, nurses and specialists should communicate better together.”
Elisabeth Kuiper (EFPIA) said “ EFPIA is working on the key challenge of multimorbidity. We currently have an IMI project on better data for better outcomes. In addition, we are launching a new project focusing on multimorbidities and we call on stakeholders and patients to reflect together on what we can do to improve care of patients with multiple conditions”.
Elke Grooten (EGA) explained that “The EGA very much value the PACT cooperation and multi-stakeholder approach to jointly address access to high quality healthcare for patients. In dialogue with partners, EGA adopted its Code of Conduct on interactions with the healthcare community to reinforce our transparency commitment. Also deriving from continuous dialogue with patients, the EGA members are significantly increasing access to major therapeutic areas and more recently access to value added medicines which are known molecules improved by innovative formulations that increase adherence to treatment and health outcome for patients.”
This session was a timely opportunity to bring all stakeholders together and reflect on how to join forces to best address patients’ needs and venture in facing the challenge of multimorbidities.
Brussels, 20 June 2018
The Patient Access Partnership, a patient-led multi-stakeholder network for better access to healthcare across the European Union, urges Member States to continue the negotiations in the upcoming Council meeting and during the upcoming Presidencies on the European Commission’s proposal on Health Technology Assessment.
Brussels, 5 June 2018
In a meeting held in the European Parliament on 5 June, the Patient Access Partnership (PACT) welcomed the Commission’s proposal regarding the future of EU cooperation on HTA and its potential to improve access to innovative health technologies for patients across the EU. This meeting, hosted by the Parliament’s Interest Group on Patient Access to Healthcare, aimed to gather health stakeholders’ perspectives on this proposal before the consideration of the Parliament’s draft report in the ENVI Committee on 7 June.
The event, jointly chaired by the Co-Chairs of the Interest Group on Access to Healthcare and PACT’s Secretary-General Stanimir Hasardzhiev, was attended by all Interest Group’s co-chairs and some 100 key health stakeholders....
Brussels, 21 May 2018
In view of the proposal by the European Commission to strengthen EU cooperation on Health Technology Assessment, the MEP Interest Group on Access will host a debate on the future of EU cooperation on HTA and its potential to improve access to innovative health technologies for patients across the EU.
By providing the platform for an exchange of views it will seek to gather the perspectives of health stakeholders before the draft report of the European Parliament is voted in ENVI. The event will take place on Tuesday, 5 June 2018 from 17:30 to 19:30 in room JAN 6Q1 in the European Parliament....
Brussels, 2 December
In response to the statement signed by more than 80 MEPs calling for continued EU engagement in healthcare, President Juncker says he is convinced that the European Union can provide high-level added value support in the field of health....
Brussels, 28 November, European Parliament
The Patient Access Partnership (PACT) warmly welcomes the recent Country Health Profiles and Companion report, published as part of the Commission’s ‘State of Health in the EU’ initiative and developed in combination with the OECD and the European Observatory on Health Systems and Policies. The comprehensive reports are a valuable step towards the development of evidence-based policies for meaningful heath interventions and long-term integrated care.
Bucharest, 20 November 2017
On November 20, the Patient Access Partnership (PACT) and the Coalition of Organisations of Patients with Chronic Diseases in Romania (COPAC) held a meeting in Bucharest, entitled “Patient-Centred Roundtable on Working Together for Accessible Health”, to discuss opportunities for improving cooperation between Romanian stakeholders for better access to quality healthcare in the country.
The event, organised in cooperation with the Health Committees of the Senate and the Deputy Chamber (Romanian Parliament) and the European Patients’ Forum (EPF), was endorsed by the Romanian Minister of Health – Florian Bodog.
Brussels, 19 November 2017
With the two-year “State of the Health in the EU” cycle, the European Commission has teamed up with the OECD and the European Observatory on Health Systems and Policies to bring together knowledge and expertise with a view to providing specific evidence-based tools for policy action. The result is a package of individual Country Health Profiles along with the Commission′s Companion Report highlighting potential areas of EU added value in healthcare.
Against this background the MEP Interest Group on Patient Access to Healthcare, in cooperation with PACT and DG SANTE, will host a debate to discuss the findings and the way forward....
Brussels, 11 October 2017, European Parliament
The Patient Access Partnership warmly welcomes the draft Opinion, prepared by the Expert Panel on Effective Ways of Investment in Health (EXPH)entitled ‘Benchmarking access to healthcare in the EU’. This work is very much in line with PACT’s priorities and therefore, the organisation welcomed the commitment of the Commission in organising a hearing on this Opinion, hosted by the European Parliament Interest Group on Patient Access to Healthcare....
Brussels, 12 September 2017, European Parliament
More than 80 Members of the European Parliament from all major political groups signed a statement calling for continued EU action in the field of health and enhanced cooperation between EU Member States.
The statement was put forward as a follow-up initiative to a recent event of the MEP Interest Group on Access to Healthcare and the Patient Access Partnership (PACT), entitled “Future Scenarios for the EU: What role for Healthcare?”which addressed the role of healthcare in future scenarios for the EU and the possibilities to strengthen and improve it.
The publication of the “White Paper on the Future of Europe” earlier this year marked the starting point of a wide-ranging and undoubtedly long delayed debate on the future direction of the EU which raised concerned about the prospect of reducing EU engagement in the area of healthcare. This stands in contrast to the the demands of the Europeans who want to see the EU doing more in healthcare (Eurobarometer survey, 2017).
Brussels, 27 June 2017, European Parliament
The Patient Access Partnership (PACT) warmly welcomes the efforts made by the European Commission in the field of public health and calls on Member States to make health a greater EU priority and to strengthen and step up current collaboration in this field.
Brussels, 13 June 2017
In view of the recent dynamics in the EU and the discussions stemming from the White Paper on the Future of Europe, the MEP Interest Group on Access will host a debate to discuss the European added-value in the area of health and the possibilities to sustain cooperation in future.
Vilnius, 8 June 2017, Lithuanian Parliament
On June 8, the Patient Access Partnership (PACT) and the Lithuanian Cancer Patient Coalition (POLA) held a stakeholder meeting entitled “Patient-Centred Roundtable on Working Together for Accessible Health”. The event, organized in cooperation with the Committee on Health Affairs of Lithuanian Parliament (Vilnius), Lithuanian Ministry of Health, Lithuanian Patients‘ Forum and the European Patients’ Forum (EPF), took place in the Lithuanian Parliament and was held under the auspices and with the presence of the Lithuanian Minister of Health, Prof. Dr. Aurelijus Veryga....
Brussels, 1 March 2017, European Parliament
March 1, 2017 – The Patient Access Partnership (PACT) joins the European Patients’ Forum (EPF) with the campaign entitled “Universal Health Coverage For All”. We encourage policy-makers to ensure Universal Health Coverage for All by 2030 and foster EU cooperation on Access to Healthcare....
Brussels, 28 November 2016, European Parliament
The Patient Access Partnership (PACT) welcomes the recent joint Commission/OECD report entitled ‘Health at a Glance: Europe 2016’, which is part of the Commission’s current efforts to build a solid knowledge base as a resource for Member States in addressing challenges to their health systems. The report recognises that resources spent on ensuring better health outcomes should be seen as an investment – both with respect to the quality of life of patients as well as to society as a whole....
Sofia, 13 September 2016
On September 12-13, the Patient Access Partnership held its first Regional Conference entitled “Cooperation within the region: a way to improve access to quality healthcare in CEE”....
Brussels, 29 June 2016, European Parliament
The Patient Access Partnership (PACT) actively contributes to the discussion on access to healthcare and organised a meeting of the MEP Interest Group on Access to Healthcare on 29 June. This event was jointly chaired by MEPs Karin Kadenbach, Andrey Kovatchev, European Patients’ Forum Secretary General Nicola Bedlington and PACT Secretary General Stanimir Hasardzhiev, and provided an opportunity for all interested stakeholders to discuss the future needs of healthcare systems....
Brussels, June 13, 2016
In light of the current EU level debates and the upcoming own-initiative report of the European Parliament on "EU options for improving access to medicines", the MEP Interest Group on Access to Healthcare will host a special event to discuss European Commission activities on access to medicines on Wednesday, 29 June from 16:30 to 18:30 h in the European Parliament, room ASP 3E2 (please refer to the attached agenda)....
Sofia, 3 June 2016
On 3 June 2016 the Bulgarian Minister of Health Dr. Moskov, hosted a ministerial meeting entitled “Working meeting of the ministers of health from Central and Eastern Europe on the issues of increasing challenges in the realm of the medicines policy”. The health ministers of Bulgaria, Croatia, Macedonia, Romania and Slovakia as well as high-level experts from a total of eleven CEE countries took part in the discussion (nine EU and two candidate countries).
Brussels, 2 May 2016
On behalf of the Patient Access Partnership (PACT) we are delighted to inform you that the Regional Conference of PACT will be held on 12-13 September 2016 in Sofia, Bulgaria.
The conference is organised by the National Patients’ Organisation – Bulgaria in cooperation with the Ministry of Health of the Republic of Bulgaria and the European Patients’ Forum (EPF). The two-day will welcome PACT affiliates from the countries in the CEE region (Bulgaria, Croatia, the Czech Republic, Hungary, Poland, Romania, the Slovak Republic, Slovenia, Estonia, Latvia, Lithuania, including Greece, Macedonia, Serbia and Turkey).
Brussels, 4 March 2016
The third issue of the newsletter of the Patient Access Partnership is already available. It provides an overview of the activities for the last months as well as the upcoming activities in 2016.
Brussels, 18 February 2016
The special issue of the Journal of Comorbidity based on PACT session during the European Health Forum Gastein in October 2015 has been published....
Brussels, 11 December 2015
On 11 December 2015, PACT partners gathered at the Information Centre of the European Parliament in Brussels for the second Partners’ Assembly of the Patient Access Partnership since its inception in 2014....
Brussels, 17 November 2015, European Parliament
The Patient Access Partnership (PACT) warmly welcomes the recent Preliminary Opinion entitled ‘Access to healthcare in the EU’, issued by the Expert Panel on Effective Ways of Investing in Health (EXPH). The fact that the European Commission requested the EXPH’s advice on this specific topic is a clear sign of the increasing political attention, and the advice contained in the document will support EU and national level efforts to address inequities relating to access....
Brussels, 3 November 2015
Register now for the upcoming upcoming meeting of the Interest Group on Access to Healthcare, which will be held on 17 November 2015 between 12:30 and 14:10 h at the European Parliament in Brussels.
Please confirm your participation to firstname.lastname@example.org by tomorrow noon (Tuesday 10 November)....
Stasbourg, 2015, European Parliament
During the plenary session in Strasbourg the European Parliament adopted on Wednesday its position on the budget of the Union for the next year. As a part of the annual procedure the MEPs voted on a package of pilot projects. The experimental initiatives are key tools for the formulation of political priorities that could pave the way new long-term activities and programmes improving the lives of EU citizens....
Brussels, October 21, 2015
The second issue of the newsletter of the Patient Access Partnership is already available. It provides an overview of the activities for the last months as well as the upcoming activities in 2015.
Brussels, 10 July 2015
The Patient Access Partnership will organise its own workshop at the European Health Forum Gastein, next 1 October 2015 at 10.45 h.
The workshop “…and how do we make it work for the patient? will be part of the parallel forum 2 “Facing the challenge of multimorbidity”, and will address the patient experience on accessing healthcare services.
Riga, 30 June 2015
The Patient Access Partnership was elected as the most tangible initiative following the Vilnius Declaration during the Latvian Presidency conference in Riga.
The Universal Health Conference which was held on 29-30 June 2015, was built on the core principles of the Vilnius Declaration and scoped out common ground where Member States can work together and support each other in the design and implementation of robust and resilient ‘all of life’ health and care services.
Brussels, 24 June 2015, European Parliament
On June 24th, 2015, took place the meeting organized by the MEPs Interest Group on Access to Healthcare "Creating Synergies between the access to healthcare agendas at EU level" and was chaired by MEP Andrey Kovatchev. The meeting was held in the European Parliament and gathered together co-chairing MEPs, EC representatives, APAs, Health attaches and healthcare stakeholders.
Brussels, 27 January 2015, European Parliament
Members of the European Parliament (MEPs) launched on 27 January 2015 the European Parliament Interest group to tackle health inequalities and enhance proper access to high-quality healthcare for all patients. The main objective of the Group is to play a major role in providing a platform for discussion and concrete action, in cooperation with patients and the healthcare community. It will also promote synergies and knowledge-sharing regarding disease specific initiatives in the EP relating to access, and other thematic interest groups to ensure maximum effectiveness....